Learn about the latest in KIF1A.ORG’s research and therapeutic development efforts, and exchange insights with families, scientists and clinicians. This virtual event will feature on-demand videos and all live sessions will be recorded for later viewing. More event details coming soon!
Agenda Overview (all times are in Eastern Daylight Time, New York City, UTC-04:00)
FRIDAY, JULY 9
12:00 – 12:15 p.m. Welcome & Why We’re Here
12:15 – 12:45 p.m. Let’s Connect: Ice Breaker
12:45 – 1:00 p.m. We Remember
1:00 – 1:45 p.m. KIF1A.ORG’s Therapeutic Development Strategy
1:45 – 2:45 p.m. What We’ve Learned from the KAND Natural History Study
2:45 – 3:00 p.m. Break
3:00 – 4:15 p.m. Family Track (Patient Perspectives Activity); Scientist & Clinician Track (Short Talks)
4:15 – 4:45 p.m. What Matters Most to KAND Families?
4:45 – 5:00 p.m. Day 1 Closing
SATURDAY, JULY 10
1:00 – 1:05 p.m. Welcome to Day Two
1:05 – 1:35 p.m. Care Guidelines: What We Have & What We Need
1:35 - 1:45 p.m. Break & Networking
1:45 – 2:45 p.m. KAND Symptoms Q&A
2:45 – 2:50 p.m. Treatment Accelerator Program (TAP) Update
2:50 - 3:00 p.m. Introducing Good Dogg Beverage
3:00 - 3:45 p.m Break & Networking
3:45 – 4:45 p.m. KAND Therapeutic Development Q&A with Collaborators (Before the KAND Conference, view recorded presentations from our therapeutic development collaborators. During this hour, our collaborators will take questions from the audience.)
4:45 – 5:00 p.m. Closing Remarks
4:00 – 5:30 p.m. Networking/Social Time